Ehlers Danlos: what is it?

May: Ehlers Danlos Awareness Month

Ehlers Danlos: what is it?

The Ehlers-Danlos Syndromes (EDS) are a group of genetic, hereditary connective tissue disorders.

The Ehlers Danlos syndromes are as 13 sub-types of EDS and hypermobility spectrum disorder (HSD) – which has similar symptoms to hypermobile subtype EDS (hEDS).

Common symptoms of Ehlers-Danlos syndromes include unusually flexible joints and skin that stretches and breaks easily. Although, as it is a disorder of the connective tissue (which is present throughout the entire body)… there are many other symptoms/issues associated with EDS/HSD.

(picture from theschooltoolkit.org)

Can it be cured?
There is no cure for the Ehlers Danlos Syndromes, but exercises provided by professionals can help you support the joints.

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Disclaimer / Information Awareness

One person’s experience of symptoms and issues with Ehlers Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) may not be the same as another person with the same condition. Remember that we are all unique and beautiful ❤.

EDS and HSD have varying characteristics in their presented issues, therefore you may not experience all or any of the issues highlighted on this page. Also, the severity experienced may be different to that of another person with the same issue. It’s good to listen to the experiences of others, to help us increase our understanding, and awareness, and ultimately help support those with EDS/HSD accordingly.

Not all issues/symptoms appear at once – they may manifest at different times during your life, some in childhood, many begin during puberty, but many as we get older too.

This page of information is not meant to replace the many amazing resources of information out there, but simply to provide another source of awareness of EDS/HSD. If you have more questions, contact Tanya for further support to see if she can either help you or direct you to someone who can help you further.

This page is in no way means of a complete source of information / awareness about EDS/HSD, but more as a quick reference. Check out our other posts for more info,

TANYA is a Hypermobility Pilates Specialist.

Helping others to learn how to manage their own hypermobility

Tanya has many years of expertise to help you with your hypermobility. Each client who has come to Tanya for help with their hypermobility will tell you of their amazing progress. The results truly are transformational.

Struggling everyday with your hypermobility is no fun if you don’t have the right support and you are not given the tools to help you effectively manage your body. The wrong support just results in more pains. Let Tanya show you the right way to manage your hypermobility.

Does this sound like you?

  • Just walking causing many pains – ankles, knees, hips and more
  • I’m exhausted all the time, I can’t enjoy going out with friends and family
  • No-one understands my pains, the GP isn’t listening, work thinks I’m faking it
  • I’m struggling to get through the day, the pains, the exhaustion, the nausea…its just never ending
  • no point in asking me where my pains are – just everywhere!
  • Every time I try to go to the gym, I get another injury – I just don’t seem to be able to make progress
  • I’m so clumsy, always tripping over, walking into door frames and tables

Tanya can give you the support that you’ve just not found from others, reducing those pains, helping you live your life. She’ll teach you how to understand your body so that you can keep managing your condition(s) for the rest of your life.

With her extensive knowledge, you’ll learn all about Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder and how it impacts your life… again, allowing you to build your knowledge so you can manage the condition (and any associated comorbidities) further.

Tanya loves to see the progress and transformation in others. It absolutely delights her! Pilates helped save her life… and she loves seeing it help others too.

Tanya has been Hypermobility Spectrum Disorder and POTS. Contact Tanya to see how she can help you: intensyslife@outlook.com or 07780 626 319

Want to find out more about services from Intensys Life? click here to link to the main site: intensyslife.com

More MAY Awareness posts

Ehlers Danlos Syndrome / Hypermobility Spectrum Disorder

  • Ehlers Danlos: how would I recognise it
    Ehlers Danlos: how would I recognise it
  • Ehlers Danlos: what is it?
    Ehlers Danlos: what is it?
  • Ehlers Danlos and fine motor skills
    Ehlers Danlos and fine motor skills

By Tanya Davies of IntensysLife

With over 30 years professional experience of delivering successful client solutions, Tanya is more than qualified to interpret a customers needs and provide them, with the right help first time. Tanya takes the time to listen and understand others, building trusting relationships to support others to achieve their aims. . Tanya is the founder of Intensys Life and Intensyslife.com, and for the past 5 years, Tanya has been focused on helping others find wellness and balance in their life through Pilates instruction. . Sharing her love of Pilates and its amazing qualities with others, Tanya is passionate about providing quality Pilates sessions so that others can feel its true benefits. Seeing how it changes others lives, is what puts a smile on Tanya's face every day. . With the right support and regular practice, Pilates helps to: * reduce back and joint pains * increase mobility and flexibility * improve posture (which in-turn reduces those aches and pains) * provides whole body strength and reduced injury risks * improve general well-being and stress levels . Diagnosed with Hypermobility Spectrum Disorder (HSD), Tanya knows only too well the challenges of day-to-day life, living with hypermobility. It is of no surprise therefore that Tanya specialises in providing Pilates support to those also diagnosed with HSD/Ehlers Danlos Syndrome/hypermobility. Pilates is key to managing hypermobility, and it took Tanya from a very poorly, immobile place, to now being strong enough to continue life like everyone else. Contact Tanya to find out how Pilates can help you.