May: Ehlers Danlos Awareness Month
Ehlers Danlos: how would I recognise it
Ehlers-Danlos (EDS) is broadly recognised by hypermobile joints, although not all EDS types present with ‘bendy’ joints.
The 2017 international diagnostic criteria was defined to formally diagnose each of the 13 Ehlers Danlos Syndromes (EDS) and the associated Hypermobility Spectrum Disorders (HSD).
Hypermobile subtype EDS (hEDS) and HSD is recognised/diagnosed by clinical criteria, the other 12 subtypes, by specific genes.
The Beighton Score is used as part of the clinical criteria, using a scoring system of the flexibility of some joints.
Formal diagnosis, is typically provided by a rheumatologist or genetics dept.
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Disclaimer / Information Awareness
One person’s experience of symptoms and issues with Ehlers Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD) may not be the same as another person with the same condition. Remember that we are all unique and beautiful ❤.
EDS and HSD have varying characteristics in their presented issues, therefore you may not experience all or any of the issues highlighted on this page. Also, the severity experienced may be different to that of another person with the same issue. It’s good to listen to the experiences of others, to help us increase our understanding, and awareness, and ultimately help support those with EDS/HSD accordingly.
Not all issues/symptoms appear at once – they may manifest at different times during your life, some in childhood, many begin during puberty, but many as we get older too.
This page of information is not meant to replace the many amazing resources of information out there, but simply to provide another source of awareness of EDS/HSD. If you have more questions, contact Tanya for further support to see if she can either help you or direct you to someone who can help you further.
This page is in no way means of a complete source of information / awareness about EDS/HSD, but more as a quick reference. Check out our other posts for more info,
TANYA is a Hypermobility Pilates Specialist.
Helping others to learn how to manage their own hypermobility
Tanya has many years of expertise to help you with your hypermobility. Each client who has come to Tanya for help with their hypermobility will tell you of their amazing progress. The results truly are transformational.
Struggling everyday with your hypermobility is no fun if you don’t have the right support and you are not given the tools to help you effectively manage your body. The wrong support just results in more pains. Let Tanya show you the right way to manage your hypermobility.
Does this sound like you?
- Just walking causing many pains – ankles, knees, hips and more
- I’m exhausted all the time, I can’t enjoy going out with friends and family
- No-one understands my pains, the GP isn’t listening, work thinks I’m faking it
- I’m struggling to get through the day, the pains, the exhaustion, the nausea…its just never ending
- no point in asking me where my pains are – just everywhere!
- Every time I try to go to the gym, I get another injury – I just don’t seem to be able to make progress
- I’m so clumsy, always tripping over, walking into door frames and tables
Tanya can give you the support that you’ve just not found from others, reducing those pains, helping you live your life. She’ll teach you how to understand your body so that you can keep managing your condition(s) for the rest of your life.
With her extensive knowledge, you’ll learn all about Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder and how it impacts your life… again, allowing you to build your knowledge so you can manage the condition (and any associated comorbidities) further.
Tanya loves to see the progress and transformation in others. It absolutely delights her! Pilates helped save her life… and she loves seeing it help others too.
Tanya has been Hypermobility Spectrum Disorder and POTS. Contact Tanya to see how she can help you: firstname.lastname@example.org or 07780 626 319
Want to find out more about services from Intensys Life? click here to link to the main site: intensyslife.com
More MAY Awareness posts
Ehlers Danlos Syndrome / Hypermobility Spectrum Disorder
Ehlers Danlos: how would I recognise it
Ehlers Danlos: what is it?
Ehlers Danlos and fine motor skills